Patient Stories from Around the World

May 15, 2020

When was the last time that you felt misunderstood for showing vulnerability?


The elephant in the room was always a subject I revisited each year. At least from the moment I experienced my first panic attack at 13 years old. Or, how about in my earlier young adult year...

March 31, 2020

Life is always going to be full of ups and downs. And I don’t understand why some things happen the way they do, mostly things that we have no control over. But I don’t think we’re meant to have it all figured out yet. The beauty of not knowing is so we could continue...

December 31, 2019

My name is Carina Imbrogno and I would like to share and publish my miracle story with others to help inspire them and give them hope it’s one way of me paying it forward. 

My name is Carina Imbrogno and I was born in 1974 in Buenos Aires, Argentina to Italian immigrant...

November 14, 2019

My name is Annette. I have been asked to share my world a bit and perhaps give a little insight. Give an example of how to grow with all the hurt and move despite it all.  I volunteer as a victim’s advocate with Mothers Against Drunk Driving. A nonprofit that seeks to...

November 14, 2019

So I guess I’ll start at the beginning, I am a twin (and proud of it!), but it meant I was born early; 3 months to be exact. That came with its own set of complications. I was born with a brain bleed, under developed lungs and well I was just teeny tiny 👶🏾 a whole 1...

October 9, 2019

Our friend and collaborator, Selma Sulejan, recently has reached out with a unique opportunity to participate in a Disability and Embodiment initiative she is organizing through a class at the CUNY School of Professional Studies. Read her letter bellow to learn more ab...

October 9, 2019

“No Mud, No Lotus” -Thich Nhat Hanh

I am still in disbelief as I look back over the last 11 or so years. I didn’t think I’d survive. Only very recently have I grown strong enough to embark on the deliberate path of wiping off the mud.  I’m smiling, beyond grateful for t...

August 21, 2019

So there I was, happily sitting in a church pew with my Bible on my left side and my journal on my right. As the pastor kept on sharing parts of his sermon, I was listening so I get the most out of the message. As I am looking at the pastor, he said the words “The reas...

August 9, 2019

Four years ago, Emily Cashel discovered a brain tumor that changed the course of her life and career. This experience inspired her to start HealthWale, a #PatientEmpowerment company, specially designed with patients in mind. With HelathWale, you can record, compile and...

July 17, 2019

One thing they don’t tell you about rare conditions is that the testing can be grueling. The doctor just wants to make sure they know what you have, so you feel confident that you know what you have. But the tests… the tests can be nothing short of torture. For one of...

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