Patient Stories from Around the World

April 6, 2018

The weather outside in Lincoln, Vermont was a chilly 36 degrees, but though there was snow on the ground and a brisk wind in the air, the atmosphere inside the Spoonie Collective was one of warmth. Beginning on February 15th, close to twenty-five individuals came toget...

November 20, 2017

“Your illness is a gift.”

“God has a plan for you.”

“Your pain has a purpose.”

“Everything happens for a reason.”

These are just a few of the very real things people have said to me since I was diagnosed with a chronic illness over two years ago. I think it was their att...

September 26, 2017

Breaking the Silence: An Evening of Storytelling in Chicago, Illinois was the seventh event in our 2016 speaker series, following locations such as Philadelphia and San Francisco, as STS worked to create opportunities for members of the chronic illness family to connec...

August 28, 2017

“Hi. How are you?”

“I’m good. How are you?”

It’s a fairly innocuous exchange, one we have all participated in at one point or another. An identical interaction you probably have several times a day, with everyone from your next door neighbor to your teacher to the cashie...

August 22, 2017

I once was blissfully

and naively oblivious, 

a little girl who was unaware

and who didn't peak around corners

or tip-toe through the world

and I often look back with 

a sense of longing for that innocent life

I once laid in the grass, 

barefoot and carefree, 

no fear of the ro...

June 6, 2017

On May 10th, Suffering the Silence held an event that was the first of its kind for the newly incorporated 501(c)(3) organization. What made it unique? Entitled Caring for the Family: Healthy Dynamics & Chronic Illness, the Boston based event, part of STS’s ongoing, c...

April 17, 2017

What constitutes a new beginning? Is it the sunrise that marks the start of a fresh day? Is it the flipping of calendar pages as you spring ahead, trading one month for another? Is it the moment when confetti falls from the heavens and we say goodbye to one year and he...

March 10, 2017

The trip to the Spoonie Collective only took an hour, but for Jennifer Smith, it felt worlds away from the life she lives every day. Living with ankylosing spondylitis, sacroilitis and some other forms of arthritis, the chronic illness retreat was exactly what she need...

February 6, 2017

Chronic illness makes people uncomfortable, that I have come to know for sure.

But this discomfort or lack of understanding manifests itself differently in each of us. It’s a fight or flight response, some find their strength and others run. There are four types of peop...

January 12, 2017

One thing that makes it difficult for me to accept my new life since being diagnosed with a chronic illness is the near constant reminders of the life I am not living. It is the continual realization that the life I had pictured for myself is drifting further and furth...

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